Monday, March 2, 2009
My Buddy!
This is Jameson Dean Moffat he was born July 11, 2007 and at 6 months old he was under 10 pounds. My sister had no idea why he wasn't gaining any weight and finally took him to primary children hospital in Salt Lake and they told her he has Cystic Fibrosis. It was very sad but we were happy to know what the problem was. When he hit 10 pounds we threw a party, we were so happy. Now he'll be 2 in July and he weighs more then his 3 1/2 year old sister! He's perfect. He is the happiest boy I know. He is always laughing or doing something to make you laugh. He loves being held and he loves to cuddle. He loves being outside and he loves playing with others. There's always something new that makes you laugh. He loves closing doors especially the fridge, if you open it he has to close it! He loves turning lights on and off. One time I caught him plugging in the Christmas lights and unplugging and doing it over and over again, I took that away pretty fast. He loves being at grandma's house and loves to play with his Aunts and Uncles. He plays very good with his Sister Savannah and he knows exactly how to get her mad. When he does his treatments for his Cystic Fibrosis he is usually very good. He does them every morning and every night. As long as you have a movie on for him he's happy. And he has his own chair he sits it when he does his treatment. Last week my mom was watching him and so Jonny and I were over Sunday Night helping her and it was time for his treatment, so we put this vest on him and it pumps air into the vest and it's his physical treatment, he does it for 30 minutes. He wouldn't let me put him down, I had to hold him the whole time, but it was a good experience for me to feel a little bit what he has to go through. Anyways, read the post below and see if you could donate even $5 it always helps. We want to keep him in our lives as long as we can.
What is Cystic Fibrosis?
Cystic Fibrosis (also known as CF, mucovoidosis, or mucoviscidosis) is a hereditary disease affecting the mucus glands of the lungs, liver, pancreas, and intestines, causing progressive disability due to multisystem failure.
Thick mucus production results in frequent lung infections. Diminished secretion of pancreatic enzymes is the main cause of poor growth, greasy stools, and deficiency in fat-soluble vitamins. Males can be infertile due to the condition congenital bilateral absence of the vas deferens. Often, symptoms of CF appear in infancy and childhood.
There is no current cure for CF, and most individuals with cystic fibrosis die young: many in their 20s and 30s from lung failure. The predicted median age of survival for a person with CF is 37 years. However, with the continuous introduction of many new treatments, the life expectancy of a person with CF is increasing to ages as high as 40 or 50.
Cystic fibrosis is one of the most common life-shortening genetic diseases. In the United States, 1 in 4,000 children is born with CF. CF is caused by a mutation in the gene.
Most of you know my Nephew has Cystic Fibrosis. Like every year Aubrey and Josh and who ever they can get involved do a walk a thon and raise money for the foundation. I have copy and pasted her letter below.
I invite you to join my team for food, fun, music at the GREAT STRIDES event in Provo, Utah on June 6th. GREAT STRIDES is the Cystic Fibrosis Foundation's largest, most successful, and most important national fund-raising event. So many young lives depend on the vital, ongoing advances in CF research - to keep that momentum going, we need your help now, more than ever! Walking in GREAT STRIDES is such an effective way to add tomorrows every day to the lives of those with CF. Your enthusiasm and fund-raising efforts will help give more tomorrows to those with CF every day. It's so easy to sign up - just visit my GREAT STRIDES Home page http://www.cff.org/Great_Strides/AubreyMoffat5858, click on "Join My Walk Team!". You'll then receive step-by-step instructions on how to register to join my team. The Web site also has lots of useful, easy-to-use features to help your fund-raising efforts, including fund-raising tips, tools to monitor your progress, and easy ways to invite people to make online donations to support your goal! Be sure to explore www.cff.org/GREAT_STRIDES today to learn more and start fund-raising! As your team leader, I'm also available to assist you in your fund-raising. Please don't hesitate to contact me with questions. Joining my GREAT STRIDES team is such a simple and effective way for you to show your support for this important cause. Together, we can make a difference in the lives of those with CF! Once again, thank you for supporting the mission of the CF Foundation, and welcome to my team! I will be making team t-shirts for everyone that can get at least $25 in donations. Please let me know when you've achieved this and what size of shirt you want. Donations can be made online as well check to the foundation or just plain cash. I'm so excited this year because last year was alot of fun. Can't wait to see you guys. Love you all. Aubrey Join My Team
Visit CF website
If you encounter a problem with a link, please visit my GREAT STRIDES Home Page at http://www.cff.org/Great_Strides/AubreyMoffat5858! NOTE: If link looks broken, cut and paste ENTIRE link into address bar. If you are presented with a "Find A Walker" page, enter my first and last name and click on "Find Walker." Then click "View Walker" by my name in the results list to go to "My GREAT STRIDES Home Page."
Thank you,
Aubrey Moffat
Thick mucus production results in frequent lung infections. Diminished secretion of pancreatic enzymes is the main cause of poor growth, greasy stools, and deficiency in fat-soluble vitamins. Males can be infertile due to the condition congenital bilateral absence of the vas deferens. Often, symptoms of CF appear in infancy and childhood.
There is no current cure for CF, and most individuals with cystic fibrosis die young: many in their 20s and 30s from lung failure. The predicted median age of survival for a person with CF is 37 years. However, with the continuous introduction of many new treatments, the life expectancy of a person with CF is increasing to ages as high as 40 or 50.
Cystic fibrosis is one of the most common life-shortening genetic diseases. In the United States, 1 in 4,000 children is born with CF. CF is caused by a mutation in the gene.
Most of you know my Nephew has Cystic Fibrosis. Like every year Aubrey and Josh and who ever they can get involved do a walk a thon and raise money for the foundation. I have copy and pasted her letter below.
I invite you to join my team for food, fun, music at the GREAT STRIDES event in Provo, Utah on June 6th. GREAT STRIDES is the Cystic Fibrosis Foundation's largest, most successful, and most important national fund-raising event. So many young lives depend on the vital, ongoing advances in CF research - to keep that momentum going, we need your help now, more than ever! Walking in GREAT STRIDES is such an effective way to add tomorrows every day to the lives of those with CF. Your enthusiasm and fund-raising efforts will help give more tomorrows to those with CF every day. It's so easy to sign up - just visit my GREAT STRIDES Home page http://www.cff.org/Great_Strides/AubreyMoffat5858, click on "Join My Walk Team!". You'll then receive step-by-step instructions on how to register to join my team. The Web site also has lots of useful, easy-to-use features to help your fund-raising efforts, including fund-raising tips, tools to monitor your progress, and easy ways to invite people to make online donations to support your goal! Be sure to explore www.cff.org/GREAT_STRIDES today to learn more and start fund-raising! As your team leader, I'm also available to assist you in your fund-raising. Please don't hesitate to contact me with questions. Joining my GREAT STRIDES team is such a simple and effective way for you to show your support for this important cause. Together, we can make a difference in the lives of those with CF! Once again, thank you for supporting the mission of the CF Foundation, and welcome to my team! I will be making team t-shirts for everyone that can get at least $25 in donations. Please let me know when you've achieved this and what size of shirt you want. Donations can be made online as well check to the foundation or just plain cash. I'm so excited this year because last year was alot of fun. Can't wait to see you guys. Love you all. Aubrey Join My Team
Visit CF website
If you encounter a problem with a link, please visit my GREAT STRIDES Home Page at http://www.cff.org/Great_Strides/AubreyMoffat5858! NOTE: If link looks broken, cut and paste ENTIRE link into address bar. If you are presented with a "Find A Walker" page, enter my first and last name and click on "Find Walker." Then click "View Walker" by my name in the results list to go to "My GREAT STRIDES Home Page."
Thank you,
Aubrey Moffat
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